Support after stoma surgery

Having a stoma is life-changing—there’s no glossing over it. Stoma surgery transforms your life in ways that vary from person to person. For some, it’s a positive change, while others find it more challenging. Some people adjust quickly, while others take much longer.

During these times, the support of friends, family, and loved ones is so important. However, remember that this is likely new for them too. They may feel uncertain about how best to support you. Being open and honest about how you feel will help them understand what you’re going through. Set boundaries about what you’re comfortable talking about and how much detail you’re willing to share. Reassure them when they need it. Let them know that, while this has been a challenging time for you, their support is appreciated. Remember, your hospital stay and recovery may have been stressful for them too, they would have faced uncertainty about how to help you when you came home.

Beyond family and friends, fellow ostomates understand what you’re going through in ways others may not. There are so many ways to connect: Facebook groups, online forums, and Instagram communities. You might also look for local support groups or events where you can meet others face-to-face. Just make sure these meetups are safe and inclusive environments. 

Connecting with a supportive community can make a huge difference. It reduces feelings of isolation, offers emotional comfort, and of course practical advice too. As one person said,  during a recent meet up I went on, “A little part of me heals when I’m in a room with other ostomates.”

If you’ve recently had surgery and are feeling alone or uncertain, reach out to your friends, family, and the online ostomy community. You don’t have to face this journey by yourself. The support you’ll find can help you heal—physically, mentally, and emotionally.

Love, 

Nikki x